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Brandywine Valley Hemophilia Foundation

Brandywine Valley Hemophilia Foundation
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CURRENT NEWS
National Hemophilia Foundation's Annual Meeting

Registration is open for this year's conference!

NHF’s 71st Bleeding Disorders Conference will be held October 3 - October 5, 2019 in Anaheim, California. Join us for three days full of educational sessions, networking opportunities and access to our Exhibit Hall. Registration include entrance to our Opening Session, Awards Luncheon, and our exciting Final Night event. Kids Program is available for children under 12 years old.

You can expect three full days of innovative educational sessions for the entire bleeding disorders community: affected individuals and family members, healthcare providers, chapter volunteers and staff—all designed to empower and support the community. The childcare program will keep kids engaged in fun educational activities so you can enjoy the three-day conference without worry.

You can look forward to:
  • A three-hour preconference on von Willebrand disease
  • A full track for rare factor deficiencies
  • Sessions for partners and spouses of affected individuals
  • A “mini-track” on basics of bleeding disorders Sessions to improve your infusion technique
  • A three-day track for teens and young adults
  • Proven fundraising and management techniques for chapter staff
  • Full tracks for physicians, nurses, social workers, physical therapists, and pharmacists
Register here: 
NHF's 71st Bleeding Disorders Conference
Category: Family Shade Member, Family, Community & Civic Organizations,Health & Wellness
Who We are

Brandywine Valley Hemophilia Foundation is a totally volunteer organization dedicated to serving the hemophilia community in southeastern Pennsylvania, southern New Jersey, and Delaware.

Since 1972 we have worked to provide avenues for personal contact with families, funded research, and helped Centers to provide for the special needs of patients and families. We are committed to the principle that the money generated by our fundraising exclusively services the hemophilia community and does not maintain the bureaucracy of our organization. We encourage the active participation of all people who share our guiding principles.

Our Mission: 

BVHF is committed to providing support to individuals and families who are affected daily by hemophilia and other bleeding disorders.  These include:
  • Funding research toward better treatment and ultimately advancing a cure
  • Funding grants to local hemophilia centers, to advance programs related to patient education and individual family needs
  • Sponsoring educational meetings and events to help those touched with bleeding disorders negotiate the ever-changing minefield of insurance company policy and home care
  • Participating in the political process, in a nonpartisan way, to advance the cause of equal access to care and resources for the hemophilia community
  • Creating opportunities for concerned individuals to show their support for our community by participating in the fundraising events that fuel our organization
  • Addressing the impact of social change by employing technology so families more easily identify the best available patient services
Our goal is to enhance the quality of life and care through our services, events, and programs that advocate, educate, and support all members of the bleeding disorder community.

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